Friday, April 29, 2011

Cori's First Easter


First Easter as a Wright has been important to us since Jena's adoption. We have a special wall with that picture beside a water color from Susan Crouch made especially for the girls. A rose for Jena Rose, and Lily for Lily Renae. Last week Cori pointed to that wall and asked, " Where Cori?" We told her it would happen soon.
This Easter will be in my memory for many years. Praise and worship was awesome. The message fro Bruce Frank was to the wall. Over 9000 people came to church in 4 services. My teen daughters served the children in AMP every service. The lines to church were a mile long on the interstate.....and it was well worth the wait!
This Easter was the end of a week long fast. It was truly a blessing. For some reason, Wes and I never had a night alone during this week. Every night we had one or two daughters in bed with us. So Sunday came, and the tomb is empty!
We went to lunch and took Cori's picture. Wes took them back to the Easter Egg Scramble. By the time she got home she was sweaty, full of and empty of sugar, and in a full tantrum. I picked her up and took her to the hall. All of that hair was in her face. She was still crying. I showed her the matted and framed picture on the wall...........her face burst into smiles. I am on the wall with my sisters! I am a Wright.
It was glorious. It was an undeserved moment of complete joy for us.
This is the picture she saw on her first celebration of Christ arisen from the grave. She ate all the food and then she spent the rest of her day beside her grandmother, Wes' mom, Janna Whitley Wright.
There is a wealth that no one can measure. It is most easily perceived by those who have suffered the most loss................quote from Stephanie Cox Wright.

Wednesday, April 20, 2011

Hard thing to admit...We trusted the wrong people





Well, we are having a parent fail. Our pediatrician examined Cori. Then an endocrinologist. No one ever said the words..."Cloaca Anomoly." Yet, the peds urologist who told us this child would need one simple surgery had declared her condition as such before he ever examined her. What is going on here?
We posted these and other questions on a blog we trust. We have had a resounding response that we must take Cori to Children's Hospital in Cincinnati, Ohio. It is the only pediatric colo-rectal center in this country. It kills me to think we trusted our pediatrician, who sent us to the local guy who mostly does circumcisions.
Is it possible that we let a guy operate on her who has only limited experience in this area? Please, God, no.
We have to wait for a referral from the pediatrician who examined her first who never mentioned cloaca anomoly.
Mr. Expert declared such before he ever saw her anatomy. Then he said it was a simple fix. Then her said the incontinence was temporary. Then he said he told us she might never re-achieve continence............While never admitting that she was completely continent in China and add days before his "corrective" surgery.
This is a child of God, not an experiment. PLEASE pray that God makes the way for the full truth, makes insurance pay, and restores her to dignity.
PS....if you read this and are on board, would you consider emailing me at anniewright@bellsouth.net?

Tuesday, April 5, 2011

What did abandoned kids experience?

A much better writer and public speaker published her blog yesterday about how much trauma her abandoned two year old son experienced that she will never know. It sounded a bell in my heart. This blog has been about Cori, but she would never be with us if we had not gone on a journey 7 years ago for Jena and 5 years ago for Lily. Last night was a big reminder as our region experienced violent and destructive storms. Lily wrapped her long and skinny body around mine from fear. She used to wake up in the car and she went ballistic if she did not know where we were. On our second trip to the beach she managed to lock herself into a closet. When I found her she was soaked in sweat and said she never wanted to go to the beach again. She was 7 weeks old when her mother left her at the base of a statue in a public park. She used to bite herself and bang her head on the floor. Today she melted in grief because Cori made a face at her. How can we fix what we do not know? Only God can do that. ......God, please enable us to be what our children really need.
Jena was 12 weeks old when she was abandoned. We know for a fact that her orphanage is a desperate place. One day after we got her she saw the orphanage director. She poured out silent tears that covered her shirt. She used to break down for no reason we could imagine. She was 6 before this stupid state would agree she was deaf......and even after 7 years of our unconditional love and her father's worship......she pulls our her eyelashes and eyebrows at night.
Her daddy was in the yard with her this weekend. The insurance is refusing to pay or the dr that puts the device in her mouth that holds the bone graft from her hip together. Her hip is still black......that was July 3 of last year.
Wes has said that if we won the publisher's house sweepstakes he would build a wing and bring in another dozen.
But last year we paid over 1 sixth of his take home pay for medical bills....not counting what he pays out of pocket to get the coverage. Not counting dental or prescriptions.
Whine whine whine.
And this relentless old woman keeps bringing faces before him.


So...you read because of Cori. We will get a second opinion the end of April......but all research says that the only way a child with her condition achieves urinary continence is with a catheter.
Good news.....it will be in her stomach, not her private access. She is in daily pain for the rash her condition causes. I found $10 plus wipes and we are trying combination of lotrimon af and cortizone to relieve her pain. She cries out....you hurt my bum. Breaks our hearts.