Wednesday

Sorry I have not updated regularly. It has been busy! Cori has done SO very well! She barely needed any pain medication, got back to walking,progressed to daily trips to the playroom with her rolling tower for her pumps and catheter bag. She painted enough wooden animals to populate an ark, did a dozen puzzles over and over again, and beat me time and again with Candyland's Castle. How in the world will all of those animals fit in the trunk of our car when it is time to go home? Diaper changes are painful as well as proper care of the foley catheter, but she bounces back. One if the highlights of the day is our nightly Skype call to home. It is so wonderful to see all the faces and voices we love and miss. Despite daily requests we still have not seen anyone from urology. Dr. Pena personally asked the urologist to come by yesterday.....no show still. Yesterday Dr. Pena examined the surgical site and declared that she could have a normal diet starting right then!! Jello was the first order of business, followed by an orange Popsicle. Apple juice, eggs, m&ms and raisins finished out the night! She was SO happy! This announcement three days earlier than we had expected, was followed by the news that she will be discharged TODAY! Last night she asked me if I wanted to sleep with her in her bed, a request I had made last week. When I told her I would wait until tonight when we were back at the Rinald McDonald House she beamed. At 9 pm she was given ex-lax. It is essential that we avoid impact ion and keep things moving smoothly every day. But last night's dose was too much. She cried in pain from all of the sensitive cleaning at 5:30 am. So I pray I can get the dose right for her every day. I sm also worried about managing her urine bag and catheter by myself for another 8 days until it is removed. Needless to say, but it is hard to turn my worrying mind off at night, especially as my head hit the pillow last night. There are so many "what ifs" I can keep quiet when things are busy, but their voices cannot be drowned out in the dark. I am making my restless mind yield these pests to prayer, supplication, and thanksgiving for all God had already done. Trying to camp out on gratitude and leave fear back in the trunk of the car......with all of those wooden animals! Wink wink.